Sunday, September 27, 2009

At Queen's Park - day 52



When I have heard about Sunday book fare I envisioned may be dozen tents and one musician band playing. . But I was instead surprised by massive event with closed roads and hundreds of tent stands, thousands of books being sold, rows of food stands, and dozens of portable toilets, and very loud music, and hundreds of yellow balloons. It was all to much for Sebastian at times, and he was crying as I was pushing the stroller, and my eyes filed with tears, because I know he always has a good reason to cry, but I am helpless a lot of times, and that was tat time again. We steered away from the loud music, and from the bright sun, under the trees, and he settled down. There were a lot of people with little kids and strollers, and some people were approaching us and signing our petition, and if they were they were always the ones ones touched by autism in their family.


Fiona, mother of Makobe came to support us, and we have great talk. She found it difficult to find proper services for her son in Northern Ontario, and so she have created the website Autism Zeitgeist to help parents find out to what services they are entitled to, what they should expect, and how to organize home based therapy for their children . It is no easy task. How many people can do that?
I have known about her for a long time, but it was the first time I have met her in person. It was real exiting, and although I could not help myself but to talk about recent changes in quality of organic matter coming in and out of Sebastian, I hope that that did not deter her completely from meeting us again.

2 comments:

  1. Hey Maryna - I had such a great time meeting you and Sebastian and Simon! I truly enjoyed our talk of diets and more! I'm so glad I was able to find you... I still don't know how I did it with all those people there! I will do my best to spread your story far and wide and get people to sign your petition. I truly believe in your son and you! I'll keep in touch and please know that I am there everyday at QP with you in spirit and in faith. Your new old friend... Fiona.

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  2. Thank you for the kind words Fiona. I do need a lot of encouragement at the moment. I had couple of rough days behind me. I feel like I just hit a brick wall. What to do, what to do?

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