Saturday, February 7, 2009

Hope.

Last Tuesday, when I came to pick up Sebastian, I was greeted by the door by very excited staff. They told me that Sebastian had done something amazing.

Sebastian is taught to use pictures to communicate. He has a binder with Velcro strips on the cover. He is given four pictures to choose from on the cover of the PECS binder; the rest of the pictures are stored inside. When the facilitator turned away to get something, Sebastian flipped through the pages of his PECS binder, picked the milk peg and handed it to her when she got back. He was not trained to do this yet. Surprised by such spontaneous request, the facilitator decided to reward it by bringing him some milk. When she was gone for a minute, Sebastian flipped through his binder again, picked another picture and walked up to another facilitator and handed it to him.

Sebastian self initiated communication twice. He showed for the first time that he understands the concept. It is hard to explain how exiting such event can be for a parent. It gives me hope.

In the picture, Sebastian has his binder and that look in his eyes--looking straight at the therapist, just a moment after he did something right. That gives me hope too.

6 comments:

  1. That is wonderful Maryna! I understand only too well how long you have waited for a breakthrough such as this.

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  2. Thank you!
    I know, not every parent would get how big it was.
    It has been a very long time and a lot of work by many great people. Every bit of it is priceless.

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  3. Maryna -- I too understand, although my son is now 43. It is a lifelong journey but it does get better.

    I have just posted an article in response to what Harold Doherty wrote today -- here:
    http://crux-of-the-matter.com/2009/02/08/sebastians-story-limits-to-aba-funding/

    Good luck. Having been an educational psychologist in private practice prior to retirement, I hope my recommendation helps.

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  4. Sandy, thank you for your article. I can use every bit of support I can get right now.

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  5. This is curse word big, my son is ASD as well (age 4.5 now), I very much hope for more to come.

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  6. Your son is lovely. I am a bit confused, though. On the video of Sebastian's IBI Therapy session, the titles (is that the right word for the wording?) say that Sebastian was discharged from his therapy before he was able to learn without IBI, but here you wrote:

    "Sebastian flipped through the pages of his peg binder, picked the milk peg and handed it to her when she got back. *He was not trained to do this yet.* Surprised by such spontaneous request, the facilitator decided to reward it by bringing him some milk."

    I just wanted to bring your attention to it, because you do seem so sad and lacking in hope. Your son has shown you that he can and does learn on his own, and I hope you will see more of this in the future. Best of luck to you both.

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